Showing posts with label fibromyalgia. Show all posts
Showing posts with label fibromyalgia. Show all posts

Thursday, June 4, 2009

I HAVE HOPE AGAIN!!!



Clearly from a couple of my recent posts, it is apparent that I had reached a very bad place. A very dark place where all hope was gone and surely to never return. Losing hope is a very dangerous place to be...however yesterday, I came to realize that there is still reason to hope.

I saw a new doctor, who is an MD/Chiropractor. Before even speaking with him, I noticed a large poster in his waiting room that jumped right out at me. It was divided into 3 parts. The 1st: a picture of someone holding an enormous handful of pills, the 2nd: a picture of a surgeon holding a scalpel, and 3rd: a picture of a doctor providing a treatment that states: "I won't prescribe meds to mask symptoms,I won't do surgery that can worsen your condition, MY GOAL IS TO FIND THE PROBLEM AND FIX IT." Imagine that, someone that wants to try and FIX the problem, what a novel idea...

He did a scan of my entire back, muscles, nerves, spinal cord/vertebrae etc. This initally had the potential to devastate me even further, as the results were bad! Really bad, even worse than he or I had initially thought. I did at least derive a better understanding of why my pain is so horrid and uncontrolled, and as he explained it all to me, I was fighting back the tears yet again...

I have been so emotionally fragile lately, bordering on suicidal that I was profoundly scared to hear anymore bad news. However, I struggled to get one sentence out. "Can you help me and fix it?" He said YES!!! Now, I am not so gullible to not recognize that he could possibly just be telling me what exactly what I wanted to hear, however what he explained next is what gave me my hope back.

He explained of course that he would do his very best which is always a nice thing to hear. He stated that he has seen several people with scans almost exactly like mine. All of them had a significant decrease in their pain after his treatment. While I may be somewhat unrealistic in wanting to be 100% pain-free, he assured me that he would be able to make a very noticeable decrease in my suffering. The pain has been so horrific that any decrease in pain would be wonderful, and so I have kicked my negativity and giving-up mindset to the curb and am positively focused on whatever amount of recovery I can obtain.

Where the hope snuck back in was in the fact that I have only gotten worse over the past year or so, with no improvement whatsoever and nothing but bad news over and over again. Now, no matter the percentage of improvement, I know that it will result in a decrease of some amount of my suffering. I'd love 100% recovery, even 50%however, 5%, 10% or whatever it may end up being, it is at least a measure of improvement rather than continuing to go downhill.

It does unfortunately mean a one hour drive there and another hour back, but I would go to the ends of the earth for any amount of relief. I will continue to post updates about my treatment and recovery that may offer hope to someone else going through the same thing and in the meantime it sure is great to say: HELLO AGAIN HOPE, I'M SO GLAD YOU'VE COME BACK...
J :>)

Saturday, May 16, 2009

CHRONIC PAIN=SHRINKING BRAIN...

Something else in research news to look forward to. The latest study indicates that those with fibromyalgia (or any type of chronic pain) seem to develop a problem with shrinking of the brain. Actually, that explains a lot. I thought my brain fog was caused by suffering and poor sleep 24/7, when in fact, my brain may be shrinking.

I am trying this new thing...Working on looking for the positive in a negative. Now, it is a little difficult to come up with some positives related to my shrinking brain, however the following is my good old college try:

1) The next time I do something outlandishly stupid, I have a legitimate excuse-"I'm sorry, please forgive my stupidity, but my brain is shrinking."

2) If I ever experience brain trauma that results in a brain bleed, there is more room in my skull now and therefore extra area for expansion that those with a normal brain do not have. Normally, time is of the essence to relieve the pressure on the brain and avoid permanent brain damage. With my shrinking brain however, the doctors will have more time. How's that for thinking positive??

3) If my brain shrinks enough, I may actually become eligible for disability benefits.

4) My last and personal favorite positive, there will be many more interesting adjectives available to describe me:

-senseless
-witless
-weak-headed
-addle-pated
-muddle-headed
-doltish
-insensate
-vacant
-dunderheaded
-obtuse

The article explains the loss of gray matter was three times greater in fibromyalgia patients than in normal test subjects. A lovely explanation that adds insult to injury, we sure are a lucky bunch us chronic pain sufferers!

Of course, I'm teasing, but one needs to keep their sense of humour when dealing with WSIB or any worker's compensation board! Laugh or you will go crazy...
Here's to thinking positive,
J